Caring For Children With Disabilities
Being a parent is kind of like living with your heart outside your body at all times. It’s a constant struggle to seek the best for your child and protect them while allowing them to thrive and grow. And when your child has a disability, it can be even more of a challenge - not only to identify the best resources for them, but also to learn how to support them the best way you can yourself. As per the US Census Bureau data, more than three million children had a disability in 2019. The various unique challenges of raising a child with special needs or a disability are constant and often surprising.
Several developmental disorders like autism and cerebral palsy affect a child's physical, mental and emotional health in ways we don’t consider. For instance, children with cerebral palsy typically have poor coordination, balance problems, and difficulty walking, which can affect mental and emotional health in ways that may not be clear on the surface. Getting a good understanding of developmental challenges and spending time to learn more about the types of cerebral palsy is obviously a good start to getting to better understand your children's unique challenges be a better advocate for them throughout their lives.
The Importance Of A Support Group
A support group's effectiveness is based on reducing isolation through contact and interaction with others. Support groups also offer you the opportunity to hold intimate conversations to express your deepest emotions and concerns. As a parent raising a kid with special needs, joining a family or parent support group can be monumentally helpful because you can share your experiences without judgment. Additionally, you don’t have to explain your situation from top to bottom in the same way you may have to with those not in the same boat, which over time, can be incredibly taxing mentally and emotionally.
Sharing your wins and challenges with fellow parents for needed encouragement is vital, in addition to learning additional insight that could come in handy when taking care of your child. In many ways joining a support group for you and your family members is an essential act of self-care.
Fostering Independence
Several parents of children with special needs often wonder if their children will be able to live independent lives. Although this is a common concern, many experts suggest taking small, proactive steps to make this a reality. Encouraging your children to take on tasks at home when they are young can help foster confidence and build essential life skills. Simple activities like being responsible for their own laundry or helping with household chores can empower them and give them a sense of accomplishment.Another way to support their independence is by considering the consumer directed Services network. This program allows families to take a more hands-on role in selecting and managing care providers, ensuring the services are tailored to their child’s unique needs. Having this kind of control can make a big difference in supporting your child's journey towards greater independence.Taking public transport or running errands together so your child can practice navigating outside the home, or involving them in everyday tasks like grocery shopping, are also great ways to help them gain real-world experience and build the self-confidence they’ll need throughout life.
Taking public transport or running errands together so your child can get used to navigation outside the home, or having them get involved with everyday transactions such as grocery shopping, running errands, etc. is another great way to gain significant experience and obtain self-confidence that will help them throughout life.
Encourage Play
Playing is therapeutic for all children - but arguably even more so for those with special needs. Keeping them active with learning new skills and exercising is essential to building both body and mind. Getting them involved in group activities like sports, camps, art, and other events to allow them to socialize outside the home environment while fostering new interests and exploration. In addition, allowing them to play with other kids can help them develop confidence and create long-lasting friendships that offer support.
A Thoughtful Misfit is a woman who doesn't fit in boxes - from how she dresses, to the way she lives, to the way she chooses to mother and to love…